The impact of lost hope for people with dementia

The summary below and a link to the full article titled “What Happens in the Brain When We Imagine the future” highlights to me, the impact of lost hope, after being Prescribed Disengagement when first diagnosed with dementia. Many years ago, I trademarked that term, after advice it would be plagiarised if I didn’t! Sadly, I now believe that would have happened.

In 2014, I also published an article about living more positively with dementia in the Australian Journal of Dementia Care, Reinvesting in life is the best prescription, as prescribed disengagement steals hope.

If you can no longer imagine a positive future, and are not supported to live with your acquired disabilities, and worse, not even told they are disabilities, it means you, and your family lose all sense of hope for a positive future. I know, and many others with dementia including some diagnosed in the last century who are still advocating and living as positivey as humanly possible despite dementia, know that there is a good life to live after dementia, albeit, a different one to what you may have been planning or dreaming of before the uninvited Mr Dementia arrived in our world. My husband and I even gave Mr Dementia a name, as we have no choice but to live with this ‘third person‘ in our life.

My dear friend Chrissy Thelker wrote in a recent blog, “There is many things of concern in the dementia world, how and why many organizations collect huge $$$ every year, but very little ever actually makes it to being used in ways that has a positive impact for those living with dementia, it’s like 30 years of advocacy has fallen on deaf ears.”  

Why aren’t the wealthy charities spending some of the money WE help them raise, on tangible services and support for the 57 million people living with dementia??????

Why are researchers and oganisations refusing to embed dementia as a condition causing multiple disabilities into new care pathways, or models of care?????

Not to do so, has many negative consequences.

  • It denies us hope.
  • It denies us access to the CRPD.
  • It denies us strategies to proactively support our acquired disabilities.
  • It denies us our basic human rights.

Check out the impact of having hope in the article below…

What Happens in the Brain When We Imagine the Future?

Neuroscience News, published 1 year ago

Summary: When we imagine the outcome of future events, two sub-networks of the brain become active. One of the sub-networks focuses on creating the new event in our imagination, the other evaluates whether the event is positive or negative.

Source: University of Pennsylvania

In quiet moments, the brain likes to wander—to the events of tomorrow, an unpaid bill, an upcoming vacation.

Despite little external stimulation in these instances, a part of the brain called the default mode network (DMN) is hard at work. “These regions seem to be active when people aren’t asked to do anything in particular, as opposed to being asked to do something cognitively,” says Penn neuroscientist Joseph Kable.

Read the full article here…



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